Tuesday Life

Special thoughts (rainbow solidarity)


Special thoughts to Annie, all my bits are crossed that everything goes smoothly for you. xx  






Time is flying and I can't seem to catch up.... !

MG with Patch. This sums him up. 

We've had a busy couple of days with lots of hugs and cuddles from TJ, waiting for his asthma to settle. Stressing about MG, who just got his licence and is exploring the world with his new GF :)  and chilling with JD, listening to him drumming and guitaring.. happy times.




I've also been spending some time re-organising STUFF.

WIP An accident while I was experimenting

Like ,my art table which was a total unusable space ( I NEED A STUDIO ALL TO MYSELF - just saying), my kitchen has been overtaken by Mr Happy Pants since his accident last July and I'm trying to claim some of it back, my bedroom looks like I live in it again not just passing through and I'm  trying to have a happier attitude in general. I think spending a little bit of time each night journaling is helping me process my thoughts and feelings. I'm getting back into my journaling, painting and drawing and have thoroughly enjoyed some accidents while playing. It feels good to be getting back my mojo. 


Some excitement ahead
I'm getting very excited to be heading to Melbourne in May with my bestie to attend the APPAs. I'm part of her rent a crowd and after seeing some of her latest shots I can't wait. 


Time with my babies
I took the kids to Lake Samsonvale yesterday to spend some time near the water, the swans, the ducks and spent half the time there laughing at my kids antics. We had a great time even with the cool wind and cloudy skies. Sadly the boys have discovered at ages 13 and 15 they are too big for the playground... lol Had to happen. 

I can't convince TJ he NEEDS a haircut...lol

We then headed to our Turtle Park, to another playground and MG and I came to the rescue of a small brown snake that was not in a happy place. Great work to the Moreton Bay council guy who moved it away from the playground.




We had left Mr Happy Pants at home and managed to escape just as he was waking... I was having some time out with the 3 boys ALONE and it was just what we all needed. I would have preferred a trip to Redcliffe but time was not on our side.. I NEED to smell the ocean again SOON. As a Newcastle girl it's hard living away from the beach. I remember laying in my bed at night listening to the waves breaking.. so calming. 

JD .. not wanting to smile

Taxi time
Today was spent taking Mr Happy Pants (aka The Man when he deserves it :))))   ) from appointment to appointment with no warning and I was not a happy Woodpuddle as my plans were to drop MG at work, come home and paint till it was time to go to work. I feel like I'm being taken for granted by him at the moment....not happy Jan.
I mean how hard is it to let me know a day or so ahead so we can all have our needs met? Instead of demanding I be his taxi for the day... Mr Happy Pants needs a slight attitude readjustment at the moment and I'm just the girl to give it to him.. hehe. How can you convince someone the only disability they have is the limitations they are putting on themselves?? 


Tomorrow it's Mummy Muffins, like a bacon and egg Maccas thingy but sooooo much better :) with maple syrup. I think the kids will be happy... I know I will be.


Hello to the bloggy readers from Russia. Not sure what is sending you here but HI.

Super Lazy Healing Day

TJ and myself have come down with the dreaded lurgie that MG thoughtfully shared with the family. The Man has too but it's so far down his list of woes we'll just let it go   :) plus seriously my energy meter for him is at an all time low.. I know that sounds terrible but I'm just one person who has to look after herself occasionally ... so I am. 


TJ has gone through BOXES of his favourite tissues and God Forbid we buy the wrong ones.... sorry Mum those hankies you gave the boys at Christmas just aren't up to the task. 


Tell me...... HOW MUCH SNOT CAN ONE 13 year old MANUFACTURE??? Fair Dinkum.. So Kleenex thank you for making a tissue that can handle this task. 


He is back to teasing the cat and dog so all is fairly normal in his world... :)


Me I'm on day 12 and still feel blah but I like the aloe vera tissues.. very gentle on my shnozz... but I'm back at work and ever so grateful I don't work everyday. This is the first cold in a long time I haven't bounced back from.... hmm and I've just agreed to a full day at work tomorrow.. oops. Here's hoping no more coughs, colds or runny noses are to be had here... fingers crossed.


Soooo today I've given myself permission to do NOTHING.. or as my brother Mikel would say NOTHINK...lol I'm sitting in my pj's, in my bed with computer on my lap checking out some great Aussie Blogs. 

Venting ... sorry

Busy morning. The Man has applied for Disability Support. Did we ever expect to be going down this path.. no way.

Amazing to think that one little needle in 2007 has had such an effect on our lives. 

It's about time Australia got it's act together (in so many ways) and provided immediate no-fault  compensation to those who have adverse effects from immunisation.  More info here in the Medical Journal of Australia. The MJA. They put forward a case for providing for those people instead of them having to go through an adversarial court case when they are already dealing with life changing circumstances. 

This sounds fair.. don't you think??

No-fault compensation, based on the ethical principle of redistributive justice, should form a cornerstone of Australia’s immunisation strategy

This might also allow the 'treatment' of the patient to be more co-hesive. The Man in his clinical notes some ignorant Dr had the nerve to actually write that this condition which we now know is Transverse Myelitis, was 'ALL IN HIS HEAD'. 

He was bundled off to see a Dr who specialised in Geriontology. Hmmmm at 41 years of age they sent him to see a Dr looking at the effects of aging. She took one look at him and told him he needed to see a Neurologist. That it was NOT in his head as his notes stated. 

Maybe with a no-fault system he would not have been treated like a 'law suit waiting to happen'. Just maybe he might have had the medical tests and treatment that could have arrived at the diagnosis in a more timely manner. Rather than waiting from the injection in Feb 2007 to Diagnosis of TM in June 2011 while investigation after investigation occurred. Maybe his symptoms might have been treated more aggressively with the appropriate medication instead of 'paracetamol' for neuraligea 

I know that he has a rare condition... but surely there is a checklist that Dr's go by... when a patient starts to present with (and I have only picked the symptoms he had.. not all the TM symptoms. Remembering also that at this point he WAS A PATIENT IN THE HOSPITAL. A major teaching hospital at that... and we are grateful (seriously) that he was still in the hospital after a nurse when flushing a canula the Dr's wanted remove created 30cm clot in his forearm.  He didn't arrive with a full set of symptoms.. they were watching as it happened as it happened. They had front row seats.. 

sudden paresthesias  - (abnormal sensations such as burning, tickling, pricking, or tingling) in the legs, sensory loss,

paraparesis (partial paralysis of the legs). 

Paraplegia (paralysis of the legs and lower part of the trunk). 

Urinary bladder and bowel dysfunction. 

Muscle spasms, a general feeling of discomfort, 

headache

fever 

Oh and respiratory problems as well.

Add to that voice - vocal cords weren't working

Ear cramp... in the ear.

Are there THAT many conditions with the same symptoms? Really? AND AND AND... I've just put in the symptoms in an online diagnosis ... which I don't think is the right thing to do at all if you are experiencing any of these symptoms NOW.. I was just checking to see if it could come up with a diagnosis and YES.. acute Tranverse Myeltis is on the list. 

So in my frustration... I managed with the same information and symptoms SPECIALISTS were seeing and hearing my husband complain of AS IT HAPPENED to get a diagnosis from a computer program.. 

Ok VENT over for today. I know he received the very best of care at the time. BUT how bloody frustrating it is to be in his shoes - our shoes. He might have received the injection but as a family WE are all victims/survivors of the adverse reaction he had. 

Family Time

Well dinner turned into a lateish  Red Thai Curry that was simply delish.... we have a family tradition in the kitchen. ... well it turned into a family tradition about the time I stopped being a martyr in the kitchen. Now the rule is 'if I'm in the kitchen getting a meal ready.... we're all in the kitchen getting a meal ready" :)  and with that simple 'rule comes a tradition'.


The upside of course is I have my family around me. We talk, communicate, occasionally argue..lol, they playfight, sometimes wrestle, sometimes drive me freakin' crazy, but we are together and I'm aware that having a 19 year old... it won't be forever so I'm taking what I can, while I can. The downside is there are 5 in the kitchen....LOL...  


peace xxx

What's for Dinner?

I DON"T KNOW... 


Help me.. I have chicken breasts and steaks in the fridge. I need to cook one and freeze the other........!!!!!!!!!!


Maybe a Honey Mustard Chicken... mmm. or Steak Sandwiches... 


NUH.. I still don't know... 


Sharing the mundane is something else I do well.... or not..lol


peace 






updated  4 hours later I still don't have a clue.. looks like they'll be starving tonight.... oops